What is a Bernina and RARE Science for RARE BARE-NINA Event?
America’s elite manufacturer of sewing, embroidery, and quilting machines, BERNINA, will join with RARE Science to host sew-in events where fabric crafters can create unique, special stuffed bears for children affected by rare diseases. Each bear is specially designed to incorporate the child’s favorite colors and hobbies and has a tag of authenticity.
RARE Science is a non-profit organization dedicated to identifying rare diseases in young patients and developing therapeutic solutions. BERNINA community members are proud to use their skills to make these very special bears for RARE children and their families. Examples of the loved and lovable bears can be enjoyed at http://www.rarescience.org/rare-bear-program/rare-bear-kids.
Amy Gutierrez, Director of Marketing for BERNINA of America, adds that “BERNINA is proud to partner with RARE Science to help children and families affected by rare diseases. We are excited for members of the community to come together to sew RARE Bears that will bring comfort to children and their families.”
Christina Waters, Founder and CEO of RARE Science, Inc., is “grateful for the opportunity to partner with BERNINA which will help us unite even more patient families around the world and bring joy to these special kids. The RARE Bear Program is instrumental in building rare patient communities around the world which is the critical foundation by which we can begin the journey to find therapies.”
RARE Science, Inc.: RARE Science, Inc. is a non-profit organization that seeks to empower patients and families, improve access to medical research on rare diseases, and facilitates therapeutic solutions for children with rare diseases. The RARE Bear Program was started in 2015 and features an international RARE Bear Army of volunteers and partners that include BERNINA, The Quilt Show, Spoonflower, Mountain Mist, and Simplicity. They make unique bears for unique “rare” kids. For more information on RARE Science and the RARE Bear Program, visit http://www.rarescience.org, or contact email@example.com.
BERNINA: BERNINA is the world’s premier manufacturer and is renowned for its state-of-the-art sewing, quilting and embroidery machines, overlockers, and embroidery software. Products are available for all skill levels and budgets. BERNINA’s products in the United States are sold through independent dealerships that are specially trained to offer service, support, and education. BERNINA enjoys an excellent reputation in the industry with ambassadors, thought leaders, influencers, and bloggers as partners.
We are hosting our own RARE BARE-NINA on June 4th. For more information please call (561)747-0525 or email us at firstname.lastname@example.org.